Clinical Trials - should I or not?

Met with Dr. Kim o - She is encouraging me to join a clinical trial program where i would have a 50/50 chance of getting a shot that ‘could’ prevent the recurrence of prostate cancer in the bones.  One group gets calcium supplements, the other group gets supplements AND a shot.   She informed me that the cancer WILL come back, and when it does it will be in my bones.  I thought she was pretty blunt about that, and wondered her motives, was she trying to scare me into the trials?   My wife and I had already decided against it as the patient is responsible for expenses that insurance (medicare) either will or will not pick up. Possible side effects were quite extensive.  We had even thrown the paperwork away.  We told her we would reconsider… she is quite persuasive.
My repeated question to her way - why don’t you just give me the shot?  Why do I have to go through the trial and have a 50/50 chance of getting it?
Her answer “We don’t know if it work or not”
so what - it isn’t going to hurt me - give it to me anyway.
I still dont understand that.
I also found out my cancer is Stage Two.

Week Two

although delayed on appt Monday - treatments continuing.  Meeting people at the cancer clinic and at the hospital and sharing our stories.  The cancer clinic supplied a discount card for the hospital cafeteria.  Food isn’t very good - but it’s cheap
Feeling a little peaked after wednesday’s treatment.  Stomach is upset and lightheadedness.

 

Treatment Started

Chub O'Reilly Cancer CenterAfter being postponed twice - tomotherapy started on Sept 15.  On Sept 16th, the machine was down.  On Sept 17th - back to treatment.  Met with Doctor and the engineer on the machine to express concern with continuity and effectiveness of treatments.  Left meeting feeling reassured.  Treatmenst on 17th, 18th, & 19th.   Machine was down on 18th and I had regular radiation.
The treatment doesn’t last long at all.  They do a scan first, then show that to the doctor in case there are any adjustments that need to be made.  Tomotherapy is more precisely targeted, they try to not radiate good tissue.  The continuous scanning checks for shrinkage and is adjusted accordingly.  The targets are a real concern - not the implanted ones, the ones they drew on three places.  They’re very faint, but i guess they now what they’re doing.
   Room at hospitality house was pretty bad.  No shower - cockroaches in the bathroom.
Not feeling any side effects aside from urination frequency.  Once an hour!  Got a prescription for FLOMAX, dropped it t WalMart only to find it will cost $240 a MONTH!  Called Dr. Kim and the nurses there called the urologist to see if he had samples (he did). 

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